This site is about a nasty virus which causes a chronic ongoing low-level infection in the body, inducing persistent mental symptoms such as anxiety, depression, memory problems, and physical symptoms like a chronic sore throat, constant nasal congestion, chronic flatulence, crêpe paper-like skin wrinkles. Sometimes this virus triggers sudden heart attacks and myocarditis. Blood tests indicate this virus is most likely Coxsackie B4 virus. Symptoms suggest it may be the same as the
yinzibing virus from China
.
Chronic Sore Throat / Mood Virus 
also i think i can explain wht some are catching this virus threw saliva if it is xmrv which is a retrovirus that is only been known to be sexualy tranmitted of blood contac,t three was a reprot i read on xmrv from the cdc which said they have been finding the virus in the mucus of the lungs in high quantitys and if thats is the case its probly the first retro to be tranmitted threw kissing which is going to be bad for humanitys future something is going to have to be done.
Ok, so wipe clean everything we think about this and lets start from scratch cause I think i have the right route to turing this around.
Soo….In my opinion (if everyone here has the same virus/pathogen) this virus mainly effects the central nervous system which in turn effects ALL parts of the body. I started taking Scullcap (natures way) vitamins and have gone from losing my job due to perfomance/illness to starting a new one and excelling at it.
Research on skullcap shows that it calms/regulated the central nervous system which in turn calms the rest of the body. CNS is linked to all parts/organs of the body to include skin. The “cloudy head” feel is gone and I have been thinking pretty clearly. I no longer have the viral headaches and have felt pretty normal for the past few days.
In my opinion that when you address the right issue, the rest will fall into place. I dont want to say this is a cure but taking the scullcap herbs have def. taken the misery of this virus and has made life livable again. I truly believe that hips theory that our prior conditions determine how bad this virus makes us feel. I don longer wear glasses nor have muscle spasms or cold tingling feet.
I just hope this is long term and not temp.
Hi Msl, Does skullcap work on the Chronic Sore Throat symptoms that Hip describes? After taking almost all Hip’s supplement recommendations and feeling almost 100%; there is still the Chronic Sore Throat at some point each day. This is the final problem I would like to solve. Thanks.
I pretty much have every symptom on this site BUT the sore throat so I have no idea. It has helped with the muscus though.
Skullcap also increases getting blood to the brain and helps with circulation. I believe the “cloudy head”/disconnected feeling is due to the lack of blood getting to the brain.
@ MSL
I agree completely about that when you address the right issue, the rest will fall into place. I have been forming an opinion that this is a compounding illness. Its like a beat up car .. it will drive a long time without repairs, but the more systems that become damaged , the more damage will be caused to other surrounding systems until the whole machine fails.
With this illness, I think if you get to the point where you are dealing with multiple things, ie fungal, bacterial, non-clearing viruses like hsv and hpv, the illness really picks up steam. But I have found as I eliminate one thing at a time, overall I improve. I have started to notice that while the wrinkling on my skin does not ever go away completely, there are days when it looks way better, and those times I have noticed directly correlate to and overall better feeling of health. I have further made the observation that my skin and symptom become bad if I slack off on eating natural and nourishing food and staying hydrated.
Thanks Msl, gonna try Skullcap and see how it helps. Will let you all know. One thing I’d like to know Msl, is what your dosage was, how often, and how long it took for results.
One thing i forgot to add to that …
Based on that principle and the 6 months of pretty much no symptoms I experienced this last winter, I think that this is beatable, but you have to whittle down to that last thing, eliminating all other challengers so your immune system only has that to worry about. This is my hope.
@E
Didn’t you say that you had an appointment with Dr. Chia before? If you met him, just curious of what he thought about this virus. Has he heard anything about it or seen anything like it before?
@ Hudson
Not yet, in Feb. I have a friend who sees him. He is aware of the China virus, but I do not know what the thinks yet about that or this.
I don’t know if any of you are following the CFS blog of Dr Jamie Deckoff-Jones MD, and her 20-year-old daughter Ali.
They both tested positive for XMRV, and they have both been taking anti-retrovirals experimentally. They seem to be making slow but good, accumulative progress over about 9 months on these drugs.
This is very encouraging.
Their anti-retroviral regimen is:
zidovudine/AZT (Retrovir) 300mg twice daily
raltegravir (Isentress) 400mg twice daily
tenofovir (Viread) 300mg once daily
The blog says:
“AZT and generic tenofovir are fairly inexpensive in Canada, very roughly $100 and $150 respectively per month. Isentress is expensive everywhere, about $1000/month.”
Dr Jamie Deckoff-Jones blog:
http://treatingxmrv.blogspot.com
Hi Hip,
Since there are two types of Skullcaps supplements, will it hurt to take them both at the same time or at least interchangebly by day? Also, can these be added to the suppliments you suggest on the treatment of this Virus. It sounds like all of these suppliments should be taken together daily at the suggested dosages. It doesn’t sound like these might have an adverse drug interaction effect, but I don’t know.
Russian Neurologist & Naturopath told me it was caused
by hormones and antibiotics in the meat. I stopped eating meat and started taking these pills called Tissue Salts and Vitamin D3, multi-B vitamin and I only eat organic vegetables. After 4 years of suffering…. it finally worked. This took about 3 weeks to make a difference. It took a full year to completely be normal again. All the symptoms you listed, were exactly what I had.
I had saved this link and was cleaning out my computer… and I realized that all of you were still suffering and thought I should spread the news. Good Luck !
I tried to speak to a few,some of them complain about “brain commands but body does not respond” symptoms,unusual tiredness.Like I sad I went to so many doctors trying to tell them about my symptoms before.Many of them as well as other people around me just think that this is not possible,I guess because its unheard of.They say they are good,its just “nothing” major,when I know exactly how they feel.
Some of them even think that I am on drugs!!Drugs!?
I notice those symptoms in them,espetially constatly clearing throat,memory loss,moods,and some people experience really fast hair graying and or hair loss or thinning.
I am not making this up!!! I do notice infected and my condition is by far worse then for many of you! In the end of 05 my symptoms were pretty bad,brain foginess was terrible.I couldnt last a day without a nap,then I started my own research,found a site that described same symptoms.They sold some “friendly bacteria”,on top of that a doctor prescribed me some deflucon(antifungal) .After taking all of that I started having crazy pain in different parts of my abdominal,starting from stomach and going down I dont know what else is there.Mucuosy siliva quadroupled,I started losing weight.My normal was about 205,in 2 previous years I gaind 40,and I went down all the way to 165.165!!!Also in 07 I started having bold spots on my head size of quater some smaller some larger.
Thats when I started noticing that I do infect people!
Throw strict diet I am now at 185 but dont really feel good as you already understand.I can go on and on about this!
Anyway organic chikcen,lamb as far as meats.Chicken boulion(I hope I spell it right) works really great for stomach. Fish. I try to find deep water with white meat,like snapper some soles etc.,Almost all vegetables(steamed at leats),garlic.Millet,buckwheat,pearl barley as for the grain.As far as drinks there is water out there that tastes like water from my home town.Mountain spring water that is pumped from underground by the manufacturer from overseas.It works really great for my pains and mucous.
I took a month of tagamet,that really helped with pains as well.Activated charcoal.liver supplements,like “liver rescue” seem to work.
Well thats all I can think of right now…
You can get a B vitgamin shots,wich helped me feel better.I dont know any doctors that do that,may be its sports med. I got my B supplement thru relatives overseas.
Just was reading on your treatments page hip about brain inflamation which “is typically due to chronic microglial activation.” According to Wiki, “Microglial cells differentiate in the bone marrow from hematopoietic stem cells, the progenitors of all blood cells.” Wonder if this accounts for Flordiafams bone spurs.
Since geting the virus I became supersensetive to weather changes.Is the anyone else that experience same tthing?
Yes,, when it get cold,.. I get a runny nose automatically and when I have a hot cup of soup, my nose gets runny quick too.
has anyone been tested for htlv 1 or 2 it causes an ms type syndrome which is what these symptoms are similar to.??
Check this out gang.. interesting to say the least.
http://www.cnn.com/2010/HEALTH/12/09/worms.health/index.html
well when i first caught this they told me i had cfs o post viral fatigue syndrome which is the same thing because i was tested for everything more than once and always was negative for everything. so as the days have turned into years now im getting worse faster and faster my symptoms that is and the was i look becomes worse faster and faster. iv come to this conclusiion cfs is just a cluster of symptoms for something they dont have a test for yet or just a lable for unknown viral illneses cfs is the wrong name for something that feels and looks so much like a degenerative disease like aids. so what im tying to say if this is a virus like so many do say this is than it is not cfs but more a disease that shares symptoms and that doctors have only misdiagnosed probly millions with cfs when they really have a serious viral infection wether retroviral or another class of virus but as far as im concerns i can only put it like this in the 80’s a virus similar to htlv caused aids they named it htlv 3 changed to hiv now in the year 2010 theres a new virus thats causeing aids and its similar to mlv’s so they named it xmrv which will more than likely just be changed to hiv 3 or 4 which ever numbers next and thats the facts there going to change the name if many time befor its givn that desegnation but it will happen trust me look in your mirrors and tell me you dont see it in your face, cfs is a temporary diagnoses because theys cant diagnose you with anything else
hey gize, an update on the yogurt/cider vinegar treatment- it really IS working! after 2 straight weeks of stinging, patchy red skin (that was even spreading to temples & forehead) & burning little pimples all over chin/lips margins, only 2 days of the yogurt/vinegar remedy has knocked the rash down by half :) :) and a lot less pain/itchying/stingy feeling & a lot less red/patchy looking- hooray
so i wanted to find out WHY this remedy is working, and guess what more googling turned up? … there is a yeast, Malasezzia spcs that goes with Perioral Derm, same yeast also causes Pitysporum rashes and wouldnt you know, that’s it! and it is a TOTALLY NORMAL part of the skin flora that EVERYONE has, and maybe even beneficial under ‘normal’ conditions but it goes Pathogenic when u are Immunocompromised (surprise surprise)
the yogurt & cider both work by making the skin less hospitable to overgrowth, which is what causes the problems in the first place… only thing is, as long as there is Immunocompromise, it can always come back, so long term external/internal therapy is needed- along with applying to your skin, your’e also supposed to take a couple Tbsps raw vinegar + eat fresh wholemilk yogurt every day, pretty much forever. but thats ok, i like salad- i’ll just switch to oil&vinegar dressing & it sure beats any of the standard rx treatments i saw. they gnarly!!
anyway i wanted to share this info with all of you becoz i will bet im not the only one of us to have issues in this dept!
here’s a couple links to pix & info on the malasezzia conditions so u all can judge if it applies for yrselves (im convinced!):
http://www.dermnetnz.org/acne/perioral-dermatitis.html
http://www.dermnetnz.org/fungal/pityriasis-versicolor.html
http://www.keratin.com/aq/aq006.shtml
http://www.earthclinic.com/CURES/dermatitis.html
My friend got sick, stomach, vomiting, headache. A neighbor took her to hospital last night. She died.
Thanks for your help and concern portlandchick.
Blessings to you all,
mom
sorry to hear about your friend “Mom”.
That’s a pretty shocking thing to drop here. Was your friend sick prior to this incident? With any of the symptoms here?
I have been sick all week with a flu like thingy.. nausea, almost vomiting but haven’t yet, and a migraine headache.
So that is pretty alarming. More news if you get any would be cool.. thx
i wonder if these poor people die as a result of the med proffesions try it and see attitude giving people antibiotics when they only make things worse,im getting worse went to the gp where she told me to go bck in a month,wtf rediculous,i now weigh 12 stone and im 6 ft tall,i havent weighed 12 stone since i was 12 years old,some 19 years ago so its going to take the gp a month just to look through my records lol,what an earth do these [people get payed for,no wonder i bet they love it getting all that money for nothing.daveyboy.
oh no!- mom! that is TERRIBLE!!! i am soooo sorry about your friend!!
…& here i was hoping it might be for once an easy fix, oh gosh… do you know what actually caused her death?? did they give her any meds while she was at the hospital, or was she on something all ready that could have possibly contributed? was it heart failure or something else, do you think?
ohhhhh… i wish… gosh. you need a huge hug, mom!! my heart goes out to you, and your friend, and her family :(
i could just cry!!
lots of prayers and hugs …h.
(e… we’ve all got the flu thing too, same symptoms as you. but hang in there, it does seem to improve after 2-3 days… extra emotional around here right now tho)
im done telling u people we have a new aids virus its not cfs or some new enetrovirus its fucking redickulous the new mole are ks not mole the dark circles under your eyes are caused by cmv all of you who think this is some new kissing disease that spreads therw households are fucking idiots hip geta reality check u see some one with hay fever and think they have this the only person on here that nos what going on is floridafam. this is an std im done saying this its just a new retrovirus get it threw your heads they dont do anything because antiretrovirals are only ment for hiv1 i have ever symptom of this and no one in my family does and ive had this for two years and now my heart feel like its going to qiut soon which would be caused by cmv all your symptoms are caused by oppertunistic infections mostly herpes viruses eating away at your heart evey intestins and nervs thats the cause
@ unk
Sorry to hear you’re feeling so distressed. If you think the moles are KS, that’s very easily able to be confirmed. Have one of them biopsied and see. It will be clear if its KS, the cells will be cancerous.
My new moles actually come and go… I only have a few that remained permanent and they look normal enough. I am somewhere in the middle when it comes to considering this illness a potential new HIV, but I think there is as much proof for that as anything else we’ve discussed at the moment.
As I have mentioned I will be seeing Dr. Chia in February, at which time I will be tested for many things I have not yet been tested for, including cmv. I have hsv1, hpv, and whatever this virus is. It wouldn;t surprise me to see tht I have cmv as well.
As I said before, none of my three exes have this. They all, at one point during our dating, mentioned symptoms that seemed to be the beginning of all of this, but in each case they went away. I am considering that, as suggested here before, this illness affects those with multiple ailments more aggressively than those without, possibly allowing them to efficiently clear the virus.
Then again it may very well be a new HIV. I can’t let myself go there yet.
anyone ever been to an immunologist?,i have an appointment on friday to see one,also ive seen a few specialists and quite a few of them have just said i have no answers for you,i told the private gp about this and he said they cant do this,they have to perform the necesary tests that they can do in their field of expertise and cannot just fob you off like that well i hope the new specialist im seeing takes this seriously and does his job.daveyboy.
@ Floridafam
I had never heard the term airborne aids before. i just looked it up.. That’s a pretty heavy idea. I’m still positive I got mine from kissing though.
anyway, while looking for info on that I found this, which is totally interesting:
on another note, I feel that I have confirmed something loosely, at least to myself: The rest of the office is over the cold that went around the office. So am I except now all of my symptoms related to this illness have spiked. Chest pains, feeling feverish, weakness, tummy trouble, sore throat etc. It was a head cold thing that went around. I didn’t even get it that bad. I got better, thought I had kicked it, and now this surge of old symptoms. So what I have confirmed is that this is a one step forward two step back scenario. I think the virus gains ground when you get ill with something else. Its like a constrictor snake. It will squeeze tighter every time the prey breaths out. We can make progress toward healing I think if we can keep from getting other things.
i too have been thinking h1n1 because of the timing i took ill,just after the swine flu had started,is it possible you could have influenza for long periods of time?,has it ever occured b4?daveyboy.
or possibly even cfs caused by the swine influenza virus?,one of my close friends also has problems simmilar to mine,did he catch the same virus but is affected in a different way?i think thats very likely.daveyboy.
ahh see that part on that link,no studies have examined the longer-term neurologic consequences of H5N1 infection among surviving hosts.so how can any gp or specialist ever know if swine influenza has a lasting effect on your health?
i always had a feeling that swine flu would be dangerous whos to say any people that are chronically ill arent ill as a direct result of the swine influenza virus?they stopped testing for it then the media hyped it all back down how convenient,and it doesnt take a scientist to work out what happened there,if it wasnt as serious as originally thought then why the need to continue vacinations?point is it seems we are bieng left to suffer due to the med proffesions mistakes and just giving up on ill people they need to be accounted for this not be left to sit around on a fat paycheck while people suffer.daveyboy.
edit h1n1 i meant lol
ahhh or even h5n1
AS far as I understand it, I don’t think influenza viruses cause a chronic infection; I believe the theory is that just occasionally an influenza virus does some damage to the body and/or brain during the acute infection stage, that then kicks off lasting inflammation in the body, that continues even after the virus is gone.
I am not sure of the details; but I don’t think anyone knows the precise how’s and why’s of this. Some influenza viruses have a habit of attacking a part of the brain called the basal ganglia. Basal ganglia damage is connected to CFS.
Hi
Am from india
I have been suffering from constant sore throat for 2 years,red bumps back of the throat,sinusitis,low grade fever,lymph node pain in armpits and behind
I have tested -ve for HIV(6 months post my last exposure),Also i tested -ve for TB,Hep B,hepc ,LDH,Coombs,VDRL,HSV2..+ve for HSV1
Please help me
thats interesting hip,i wonder if ive caught swine influenza and my body never reacted to it or it had such a hard time controlling it that it left damage and inflamation,what i dont get is when i went through the infectious disease testing a while back,they said there was no evidence of inflamation markers like my body wasnt inflamed,this cannot be simply because my lymph nodes are swollen,my throats swollen and i think my lungs will be too,possibly my brain due to the constant ringing in my head and dizzyness,i think theres much more testing can be done theyre making out like theyve done everything when im certain theyve only scratched the surface something must show somewhere.daveyboy.
Well, finally some recognition for CFS suffers … but not the kind that we were hoping for.
“Red Cross bars chronic fatigue patients from donating blood”
http://voices.washingtonpost.com/checkup/2010/12/red_cross_bars_chronic_fatique.html
However, researchers are saying that there could be some promising findings come out in the next 12 to 18 months.
… hopefully.
Intriguing news: first apparent cure of a HIV infection… as a side effect of a stem cell transplant for leukemia:
http://www.eitb.com/news/life/detail/564663/us-man-is-cured-hiv-bone-marrow-transplant/
Just curious Hip, you seem to know a bit. Can a person say with MS or something with an active herv virus spread it to people that dont have it active in their system? Im just curious if these hervs are popping up in people after coming in contact with someone with one of these active viruses that were once dormant.
I don’t know that much, but I know that in general, with many human endogenous retroviruses, not all the genes that encode for the entire virus are present; some of the genes have been lost in time. For example, the genes that encode the viral capsid (the viral shell) are often missing, so you cannot make a full virus particle from the available genes in most HERVs. For this reason there little chance of contagious person-to-person infection from most HERVs, I believe.
However, often the HERV genes that are still present in the human genome may encode for potent things like superantigens; these are special antigens viruses and bacteria make to cause extreme inflammation in the body, in order to screw up our immune system. This is probably why HERV gene activation has been found in inflammatory diseases like MS.
But you do get some endogenous retroviruses that are contagious: there is a very good chance that XMRV came from a mouse endogenous retrovirus that jumped into humans.
Xenotropic murine leukemia viruses (XMLV) are endogenous retroviruses of mice, and xenotropic murine leukemia virus-related virus (XMRV) is 90% identical to XMLV, so it is generally believed that XMRV came from these XMLV mouse endogenous retroviruses.
well had to go back and see breathing specialist this morning,my spirometry was in his words rubbish,also he did ecg,x ray of my spine and wants me to have a ct scan of chest thinks i may have copd,why couldnt my gp or other specialists have been this helpfull?,he wasnt pleased about my gp bieng dissmisive ect but said his main concern was my chest,this has been 3 years coming,i knew it,wonder what the immunologist will say im seeing one tonight i think ive had a respritory virus all this time and i reckon its done some serious damage,a big thanks to the med proffesion.
Let us know when there is a cure
went to the immunologist earlier hes going to run some more tests,try to see what my immune system is doing,although he does seem to suspect it will be working fine,ill get the tests done and see what happens from there.daveyboy.
could please tell me what ths virus is called..Is there a test for it?
What sucks about the medical professionals is that many of them run their operation like a business not like a doctor. I know this this is spreading in my area yet few people talk about it. Like I said before, the only way doctors are going to care about this is A) if people are falling over dead or B) they have the virus themselves. Otherwise why would they care. You’re not on your death bed so go home. That’s what I hate about it. Even if it was discovered, new research and meds take forever and cost too much. I’m afraid it’s going to last beyond my lifetiem and I’m not go to live to see the cure or treatment. They might discuss it when I’m like 50 years old and maybe 20 years from that they announce treatment. Just my two cents.
Please look into this I think I found the answer:
Respiratory Distress Syndrome
http://www.iftf.org/node/2317
http://www.nejm.org/doi/full/10.1056/NEJM200305223482117
http://www.healthboards.com/boards/showthread.php?t=710979
I’m positive this is the core of most supposed cases here. I am a part of this discussion board only to help warn others about this disease, provide information and prevention to those that have a stronger immunity to this disease or have yet become infected.
I am now 100% positive that this condition is THE MOST contagious disease topping TB or Cholera. It’s been recognised by physicians, media and the average Joe, all over the world in the past few years more and more but without the right name (they call it whooping cough or allergies in the US) As you well know, they misdiagnose most patients, commonly, with conditions such as CFS/ME, Fibrosis, Celiac and Depression/Anxiety. Why?
LACK OF CORRELATION TO SPECIFIC/GENERAL SYMPTOMS AND KNOWN OR RARE UNDERSTOOD DISEASES!!! THEY WON’T FIND THE SOLUTION ANY TIME SOON! AT LEAST NOT THE ONE WE WOULD LIKE! INSTEAD YOU DIE NEAR THE SAME RATE BUT WITH HORRENDOUS DEBT!
What do we do about this? It’s easier said then done, believe me, but it must be carried through in order to save the remaining healthy populace in your area. Request quarantine. This is the only safe and rational alternative. I stated this before. THIS IS REAL, TALK IS USELESS. QUARANTINE, PROVE TO THEM YOU ARE AN EXTREME THREAT TO NOT ONLY YOUR OWN AREA BUT THE STATE OR PROVINCE AND COUNTRY!
No talk. Prove it to them, even if you loose everything.
prove it to them they wouldnt blink an eye youve more chance of winning the lottery,also has anyone read about people dying from swoine flu again?seems its still around i read it in the paper while i was at the immunologists it seems to be affecting younger people too not older and i read a little girl has died from it,well done med profession,when are they going to wake up.daveyboy.
My family has told me to quit looking up symptoms on line cause it makes me think everyone is getting sick, so I guess I’m done
Bless you all,
mom
people are getting sick mom,im sorry your fam arent supporting you more,i thnk looking online my not give you any answers but i can assure you theres something going on for certain.daveyboy.
hi again mom, i hope that should you start feeling quite alone you will come back now & then… i think that worse than forever being ill is feeling all alone in it with no one to talk to, i couldnt take the isolation and realized i couldnt make it without some connection to others who understand becoz they are there too…
i hope that even tho your family is concerned you may be doing yourself more harm than good by trying to stay connected to what is going on, that at least they will understand your need to remain connected with other people sharing similar life experiences…
prayers & hugs… h.
I am visiting my family for christmas. I had been waiting months to show them the wrinkles on my arms, thinking ok heres’s something I can actually show them. They’ll understand now. They’ll see. They’ll actually believe me instead of just humor me. They basically laughed saying oh its just aging and then got angry when I tried to get them to consider the wrinkles weren’t there in June. God how I wish I had taken pics before the wrinkles.
Everyone is in denial or doesn’t care or I don’t know what. What the he’ll do people need to see to understand what’s going on here?
I get it now. I’m on my own with this one. And people are doomed.
@E,
You’re not alone on this. Many people up here have this virus. I meet someone with this everyday. People naturally are not going to believe you until they get this themselves. The problem is that since no news or doctors openly talk about it, no one will believe it since it’s like something from a bad science fiction movie.
my hart wont stop palpating fuck i feel it beat all day almost lke a hart attack pens and needles alover with hart palpitations
unk i used to get bad palpitations,i believe it was my bodies response to something going on as ive sort of come to terms with being ill like this the paplitations have gone away.daveyboy.
I have just sent out to everyone an email regarding the very good results I am getting with Saccharomyces boulardii. Check your inboxes…
I am happy to tell of my complete remission (maybe cure) from CFS. I haven’t had any symptoms for almost 8 months, but still working on repairing damage from 10 years of illness. Along with antivirals and antibiotics for CPn and EBV infections, I was taking methylation promoters, immune booster and antioxidant supplements for about two years. Also had mercury-silver fillings removed, and chelated heavy metals. It’s possible others things I was doing helped me, but taking the combination of Inosine, DMAE seemed to have a very positive effect. This blogger http://cfsendeavor.blogspot.com/ did a lot of research into Inosine, and the similarities to Immunovir, linked to this patent: http://www.google.com/patents/about?id=EqQnAAAAEBAJ
Immunovir (also known as Imunovir, Isoprinosine and Inosine Pranobex) is a combination of Inosine and DiMethylAminoIsoPropanol (DMAIP). DMAE is DiMethylAminoEthanol. DMAIP and DMAE are both similar amino alcohols, so taking Inosine with DMAE is very similar to Immunovir but only costs only about $21/month and is available off the shelf or internet in the US. Immunovir is prescribed in Europe for CFS and as an antiviral, and boosts Natural Killer Cells of the immune system. I was never tested for XMRV, but maybe the combination of Inosine/DMAE/L-Arginine is an effective antiviral for XMRV?
I don’t understand everything in the patent linked above to know the exact RNA anti-transcription effect of the ingredients.
I took Inosine first at two different times for 2-3 months each with a slight improved feeling, then added DMAE in later and took both for about a year, 2-3 months at a time, once for 6 months straight, with 1-3 week breaks between. I was taking Inosine 2x 1000 mg each morning (from Ultimate Nutrition and Source Naturals), sometimes another 2000 mg before dinner. I was taking ‘Source Naturals’ 351 mg DMAE 2x day, and at some point also started taking ‘Vitamin Shoppe’ 2000mg L-Arginine/L-Ornithine once per day.
If anyone else wanted to try this, start slowly with smaller doses and add one supplement at a time. Also take glutathione promoters/ liver protectives like NAC or milk thistle, and dietary fiber to bind and help eliminate any die-off toxins. Some people cannot tolerate DMAE-possibly the methylation or detox system needs to be functioning or supported first. Inosine promotes uric acid so anyone with gout should also not take it.
By the way, Doug, how long were you taking L-Arginine for, roughly? Any sense of how much L-Arginine might have contributed to the recovery?
so guys im convinced i have htlv1/2 mylopathy tsp/ham for i have every symptom ive read it can occure as fast as 3 months after infection im going too ask for a spinal tap on my nexy appointment for htlv1/2 pcr the only thing that does’nt make sence is how hard it is for men to catch it from female but im guess iing anything is possable so its worth a shot a diagnoses would be great its wierd how no dr has not even looked for this enev infectious disease dr’s i live in south east us so its very possable this is the problem i just hope if it is im one of the lucky one that respond well to trreat ment most however dont with htlv 1/2.. any thought
Hi Doug, How did you originally catch your virus? Thanks
I took Folapro and Folic Acid, Biotin, B12, TMG, Sam-e similar to the Simplied ‘Yasko’ Methylation protocol. Another good methylation cycle explanation is here:
http://www.ei-resource.org/articles/chronic-fatigue-syndrome-articles/the-methylation-cycle/
The supplements I was taking (2/2009) when I started to get better:
Inosine 2x 1000 mg each morning, sometimes another 2000 mg before dinner (anti viral, immune booster)
DMAE 351 mg am, sometimes pm (opens cell walls for Inosine to increase penetration)
L-Arginine 1250 mg-Ornithine 750 mg am & pm (allows Inosine to persist in body longer)
NAC 2x 600 mg am & pm (protects liver, promotes glutathione – possibly increases hypoxia)
NADH 5 mg am (increases ATP production)
http://ccforum.com/content/cc1824
and http://www.whatislife.com/reader2/Metabolism/pathway/no.html
SAM-e 200 mg am
Multivitamin am
Astragalus 2x 500 mg am & pm until I run out, then take a break (immune booster)
TMG 1000 mg am (Betaine – decreases homocystein, needed with B vitamins, possibly needed with DMAE)
Supergreen ‘Perfect Food”(alkalizer, fiber)
Vitamin A 1000 iu am & pm
Vitamin B12 5000 mg am
Vitamin C 1000 mg 3x day
Vitamin E mixed 400 iu am
Vitamin E Tocotrienols 125 mg pm
Milk Thistle Extract 300 mg am & pm (protects liver, promotes glutathione)
Horney Goat Weed 1000 mg 2x am (vasodialator)
‘Source Naturals Life Minerals’ ( incl 40 mcg iodine) am & pm
Acetyl-L-Carnitine 500 mg 1x day (I stopped when I found it lowers thyroid function)
http://www.ncbi.nlm.nih.gov/pubmed/11854487
CoQ-10 100 mg am
Alpha Lipoic Acid 100 mg w/ 333 mg Biotin am & pm – don’t take until clear of heavy metals)
Fish Oil(450 mg EPA, 300 mg DHA) am & pm
5-HTP pm
Melatonin 3 mg pm
If you eat a lot of fish or have silver/amalgam (50% mercury) teeth fillings, you should be tested for heavy metals first and get rid of them if levels are high.
http://www.healing-arts.org/children/holmes.htm#treatment
Many vitamins, Alpha Lipoic Acid, and antibiotics act as heavy metal chelators. If your bodies toxin elimination is functioning poorly or overloaded, metals get reabsorbed in your gut, redeposited throughout your body and brain. The metals alone can cause CFS symptoms, anxiety, brain fog. Taking dietary fiber after taking supplements can help absorb and bind toxins to help eliminate.
Hey everyone,
I’m sorry that I have been so long to respond and that I will not have much time to write today but here I go anyways.
I am so sick (no pun intended) of be discounted as a hypochondriac but I am sure that, soon, everyone will believe me. I have had tremendous trouble coming to grips with the fact that I am not to blame; I was convinced that I was the first person to contract this virus in my area and that I am responsible for everyone here having it now. Even if that is true, it is not my fault that I believed the numerous medical professionals telling me that I was fine. I am certain that a very large percent of the population here are now in the infantile stages of infection. I believe that Kevin Bieksa of the Vancouver Canucks has this as well as Kieth Ballard (likely others as well though not showing).
http://canucks.nhl.com/club/news.htm?id=544873
I also saw this today; I saw the June/10 video first and noticed that the guy on the left definitely seemed to have the telltale throat-clearing. So I immediately went to look at their latest video to see he if did in fact still have the same thing. I could tell that he had become more “used” to it because it took until 5min30sec for him to make his first cough, his co-host notices how fast he is drinking his beer
First: http://www.youtube.com/user/diggnation?blend=1&ob=4#p/u/76/eMgIxGyH6ds
Second: http://www.youtube.com/user/diggnation?blend=1&ob=4#p/u/0/dyeBnvYl5jA
It looks like this guy caught it at the South by SouthWest festival in Texas back in mid March/10 (right around when I caught it!). This shows me that the virus is making it’s way around North America right now and I cannot allow myself to feel guilty for having spread this to everyone though. Strangely enough though, his co-host does not seem to have the sore throat but he could be one of those who doesn’t. They do both complain of having particularly bad hang-overs recently.
Anyways, I have no solutions, just the suggestion that, very soon, the majority of North Americans could have this infection and some scientific research may actually begin to find and give a name to this virus, whether it has been discovered or not.
I have a theory, which I am sure that many of you will agree with or have already discussed in this forum, that this virus is increasing our rate of aging. The stress of this virus is speeding up our aging process to the point where our skin actually begins to wrinkle at a very young age. Someone I know who tells me that she has always had dry hands in the winter is having the worst winter she has ever had. I have begun to notice a very slight increase in the number of wrinkles around my knuckles and I am really not looking forward to how I am expecting this to progress.
I think that the idea that this virus attacks our muscles may be very accurate because of the results of the biopsy that I had on the lumps in the back of my throat; the otolaryngologist told me that he was surprised to find that he had actually removed pieces of bone-muscle from my spine when he tore out three pieces of the back of my throat. Perhaps the virus starts in the throat, travels back to the spinal cord through our muscle, and then on through the nervous system to systematically take us down.
I have had some very radical thoughts that I must share with you all; at this point, I have only run the idea by my Dad who still doesn’t believe in the severity of this infection that I have warned him about.
Here it goes:
I am not a religious person but I would like to call this “The God Virus”(not like the idea of religion infecting society). Let’s say that this is XMRV and that it could possibly become part of our genetics for the rest of human time on Earth like the other HERV’s we have. This virus doesn’t seem to want to kill us; I am sure that it would just love to find a way to live in symbiotic harmony with us instead. If there is no cure and our only solution is live our lives in the healthiest lifestyles possible, then it seems almost as if nature is whipping us into shape. It is ALMOST as if we are being punished for the disrespect that many of us have had for our own bodies for many generations. This virus may in fact kill off many people such as the elderly, the obese, the already sick. As morbid as it sounds, these people should not be alive; we are not supposed to live to be as old as we have been living to; people with natural born illness/disease/retardation are not supposed to survive, and those who drink/smoke/eat unhealthily are not deserving of their bodies. Only the strong/healthy/smart will survive but even they will have to change their behavior; we cannot breathe polluted air or eat anything but organic foods.
Is it totally radical to think that, as much as it REALLY sucks to have this sickness, it could be for the overall good of humans and our ecology? As horrible, hypothetical, and hypocritical as it may sound, I think that many humans need to die in order for our future as a species to be safe. The idea that this virus may actually end up saving the human race from itself is why am choosing to call this “The God Virus”.
On one hand, I am really hoping that this virus is curable and that I will feel normal again one day. On the other hand, I hope that this virus does make a dent in our population and our crappy lifestyles. Sometimes I think that the latter thought is entirely outrageous and that it could have arose in my mind from the so-called “powerful psychological changes” that we all agree that this virus induces.
…
I recognize that these statements could really set some of you off in anger but please understand that I have this virus too and that I have felt many times like this virus will be the death of me.
Wishing you all well, a Merry Xmas and happy New Year.
Sincerely,
D
i think its not just the people that are to blame for the crappy lifestyles its the government ect allowing the cigs to be sold fast food to be served and poor healthcare because lets face it health care is rubbish,cigs should be banned full stop and takeaways ect should should be accountable for whats bieng put in their food,alls well saying its peoples own choice but theres nothing like giving enough rope for one to hang ones self,of course it all boils down to one thing which is greed despite the fact we know cigarettes kill people for instance they are still legal why?so they can make money.daveyboy.
Everyone here should look at the possibly they might have Q fever. That includes our friend “unk”.
Symptoms of Q fever
Q Fever: Symptoms
Q fever is very contagious. But many cases of acute Q fever are asymptomatic or very mild, and go unnoticed; so for this reason, other members of your family may have caught it, but you would not know.
Chronic Q fever can be cured, but it takes a lot of antibiotics.
well it could be vulsikes encephalitis the spelling is not totaly correct its caused by a mlv that eats away at you brain slowly is originates from russia casues all these symptoms and more
then you have ve disease which is caused by a picornavirus
to be honest it could be anything most likely it untreatable
Thanks for your comment, Anonymous.
The virus you are referring to is the Vilyuisk human encephalomyelitis virus (VHEV), which causes an unusual neurodegenerative disease in people living in Vilyuisk, Yakut Republic, in the Russian Federation.
This neurodegenerative disease is know as: chronic Vilyisk encephalomyelitis. The first symptoms on catching the the Vilyuisk virus are fever and severe headache, like a flu. Then the virus goes dormant, showing no symptoms for many years. After a decade or so with no symptoms, the virus then starts to cause the chronic Vilyisk encephalomyelitis disease.
The Vilyuisk virus is from the Cardiovirus genus, which (like the Enterovirus genus) comes under the umbrella of the picornavirus family of viruses.
It is believed that the Vilyuisk virus is only found in the Yakut Republic.
There is also a relative of this Vilyuisk virus, from the same Cardiovirus genus, called encephalomyocarditis virus (EMCV), which is more widespread. EMCV can infect many animals as well as humans; it causes severe myocarditis, and infects the central nervous system. Sudden death is often the first sign of EMCV infection. However, EMCV is rare in humans, and humans do not usually experience these more severe symptoms.
Another virus from the Cardiovirus genus that is very common in humans is the New Saffold virus. This virus is found in most people.
Here is an excellent article by Dr. Mercola, M.D., which among other things addresses some of the more prominent symptoms exhibited by many of you, including fatigue and various skin problems. Scroll down to the window/table entitled with the lead in, “Common signs that you have an imbalance in these two fats include:” to find your particular symptoms. After reading the article, click on the Link at the bottom of the page to read the “Comments” for additional information. Dr. Mercola is one of the best physicians in the field of alternative medicine. If you haven’t done so already, consider subscribing to his free online medical newsletter which will also give you access to all of his archived articles.
http://articles.mercola.com/sites/articles/archive/2010/12/20/omega3-fat-useful-to-improve-adhd.aspx
I have just started taking larix occidenatalis. It is an immune modulating arabinogalactan, a soluable dietary fiber, and prebiotic, with antibacterial properties. I’m reading it will take many weeks to see the benefits.
As far as I’m concern, the probiotic doses should’be comparably small,becase immune system is not quite healthy.
As far as energy I wouldnt recomend any fruits,sweets,wheat products.They are dirrect food for yeast in your stomach.Yeast is a part of our diagestive systems.They can and probable will overgrow with a weak immune system wich will result in all those symptoms described above.I am not discounting the virus.Its the main cause of a weaker immuity.But a big part of fatigue causes are the toxins(ethanols) that overgrown yeast produce.Its like having a hangover that will not go away.
Steemed veggies are the best.Dont eat raw veggies,because they are harder to diagest.Garlic should be consumed choped with food,because eating whole thing makes it harder to diagest again.
There is a website out there created by a lady(Ann Boroch) ,who cured herself of MS,an autoimmune disorder, mostly by dieting.She had a list of “to eat” and “not to eat” foods that she recomends.Works pretty good for me.
No plastic bottled water.
There is water called IceBox.It comes from Norway.They “harvest” it from deep underground.Tastes like water from my hometown overseas.I can assure you,nothing like you ever had before.
Good like with your fight…
Oh…Forgot…Really good vitamin C supplement.Its called
“ALLERGY-C CAPS” made by “TWINLAB”.Dont take it on empty stomach thou.and do take it with a good amount of water…
@ Unk and Hudson
You have gotta try this stuff:
http://www.proboostmed.com/
Im looking into mitochondrial degeneration. There is something called PQQ that apparently causes mitochondria to regenerate. Interestingly, mitochondia is the only other cell part besides the nucleus that has its own DNA, which means it can replicate within the cell. Here’s some info on it. I am definitely going to be checking it out.
http://www.longevity-and-antiaging-secrets.com/mitochondrial-biogenesis.html
@ hip
My friend who was recently diagnosed with parkinson’s is taking pqq. He’s in a trial group to see if it helps his symptoms and I guess there’s some evidence it might.
I am in Ohio. I have been suffering from irrational thoughts, feeling quite enraged. I noticed I am accumilating quite a bit of plaque on my teeth, before that I was having pain & some bllod/infection taste in a tooth in the back. The dentist said it was perfectly health & basicilly acted like I was imaging it, but said come back if it worsens. I am on doxycycline ( i dont take it often) but he said it it a treatment for dental diseases also. I take it for a skin disorder that noone can explain. I have been told its adult acne but also been told it is cellulitis brought on by stress (staff/step) I have been having excess gas & stomach gurgling also. I seem warmer then normal. I do not have a soar throat. I had already decided to do a parasite cleanse & iodine suppliment before finding this article. I definately felt that these were symptoms. My husband has had similiar symptoms to. I have had all the std tests. We did get mono from my daughter last year which sucked. Our life is very high stress right now. The dental plaque & sensitivity & stomach upset & also I keep the house now at about 62degrees, when i normally like 72. I was on accutane years ago & feel it has major effects-maybe simialar to this.idk, interesting. I usually print stuff like this for my NP.
Just a tentative early report on the results of taking Larix, which I have been doing for about a week now (also I am taking 6 pills a day vs the recommended maintainance dosage of 2):
Since I have had this illness I have gotten every cold and flu that has gone through the office. Right now all around me I have coughing coworkers. Its been that way all week and last. I started to feel a cough and body aches coming on a few days ago, but after just one day I am as far as I can tell completely over it.
In any other similar scenario of the last three years I would have gotten super sick and it would have lasted twice as long as everyone else’s.
The only thing I can attribute it to is the Larix. Very interesting. More info to come as I wait for improvement…
@ Hip
The link you provided to the PQQ is the same company in who’s magazine I first read about PQQ last week. Life Extension.
Hi E
Great that you are experimenting with supps.
I used to read all of Life Extension’s stuff (www.lef.org) years ago, before I got this damn CFS; I always was very pro-health before, doing all the right things. So much for that strategy.
PQQ seems quite similar to Q10. I take Q10 now and then; I find Q10 helps with energy, and mood boosting (at dose of around 200 mg of Q10 or more). So perhaps PQQ will provide similar – and maybe even better – benefits. I will get round to trying PQQ at some point; I am trying so many things all the time.
By the way, those with irritable bowel syndrome or SIBO: have a look at the possibly this might be caused by an intestinal infection with the protozoan parasite Blastocystis hominis. It can create dire physical and mental symptoms. And Blasto is very common. See here:
http://www.badbugs.org/Blastocystis_hominis/symptoms.htm
Blastocystis hominis is hard to test for, and hard to eradicate (though not impossible). For those who had IBS/SIBO before catching this virus: it may be due to Blastocystis hominis, and this may be a major contributor to our physical and mental symptoms. Killing off the Blasto at least may take us up to a better level of health.
@ Hudson
Where you been man? You ok?
New antibotic for IBS relief. http://www.webmd.com/ibs/news/20110105/2-weeks-of-antibiotic-therapy-relieves-ibs
@ Bastante
Unfortunately that antibiotic is only effective in some cases. I did 4 rounds of rifaximin and neomycin with it having little effect, and my friend’s results were the same. However we were both being treated with it for SIBO, not IBS. It also should be considered that SIBO/IBS is likely compounded by a lack of beneficial bacteria in the gut. Rifaximin will kill all the bad bacteria, but also all of the good bacteria. What eventually did work for my SIBO was a combination of the two antibiotics mentioned above plus a two week special liquid shake diet. Without the starvation diet the antibiotics did nothing for me.
See this website for the life cycle of Blasto:
http://www.ehow.com/facts_5343918_life-cycle-blastocystis-hominis.html
Note that many strains of Blastocystis hominis cause no problems. This is why people can test positive for Blasto, but be perfectly healthy. I believe the highly pathogenic strain is thought to have come from some Middle Eastern countries.
Maybe then a pathogenic Blastocystis hominis strain is responsible (in part) for Gulf War Syndrome/Illness. In fact, this website says that it is looking into Blastocystis in Gulf War veterans:
http://www.bhomcenter.org/
Remember that GWS often spread to family members, and no doubt later to the wider community.
Perhaps some nasty local pathogen like Blasto might explain the aggressive rival behavior often found in that region – even before the West arrived.
(Perhaps Near East conflicts are also caused by some behavoir-altering, stress-inducing pathogens found in that locality too. All these leaders trying for political solutions for peace – that good; but maybe the problem of human warlike aggression is actually routed in the a brain chemical imbalance caused by hidden infections, that create anxiety, fear, paranoia, aggression, irrationality.)
Hey everyone,
what’s up? I didn’t post anything recently. I cannot feel I am getting worse or better these months. Hope we can make a great progress this year and get better!!
According to my experience，yogurt and bee glue may help us a little.
A couple years ago, my last year of college, I started noticing a strange mental shift in my consciousness. The worst part was the severe and debilitating anxiety. It was constant and overwhelming to feel. I knew it wasn’t just plain anxiety because I felt the same alone, at a party, and giving a speech. Usually speeches have given me anxiety… I’m guessing that I was so disconnected with reality that I did not experience any (extra).
My anxiety has greatly lessened since. It took 2 years of experimentation to get to where I am at. In a way now I have less anxiety than I have ever had in my life, but I think that it is because my brain is so slowed down…
My mental state was changed forever. I’ve never gained back my previous quickness of thought. I was a confused mess with a terrible memory – mostly bad short and long term. It’s still not back to normal. I might say it’s about the same as before, but without the concurrent anxiety it has been much easier to manage my memory and other symptoms. It’s very sad to lose something that I always held as my greatest strength… Does it come back 100% ever? I really really hope it does. Should I look into anti-inflammatory supps?
I used to be the person who never forgot a thing. I used to memorize textbooks on my first read through. I used to not have to even read them for school because I could figure answers out using my smarts. Now I look away from the screen and forget what I am writing. I couldn’t tell you without looking what I said earlier in this paragraph as I’m writing this. It feels like my mind is completely blank. My emotions are blunted. I’ve probably become depressed. I sure am as I’m writing all of this down! I’ve lost a lot of friends – used to be ridiculous how often my phone rang people started to call me Hollywood. Now I don’t even carry it with me because I don’t get calls. My girlfriend is still with me (3 years) but things aren’t going great either. And I couldn’t blame her if she wants to leave me!
I just recently have been getting slight fevers. I used to be FREEZING even in summertime! A month ago I felt a bit flu-ish which went on and off with slight fever and muscle weakness. A couple weeks ago I came down with a chest infection. 101 fever and I felt like poop. I took z pack and now the chest gunk is gone but I still have a slight fever (under 100) constantly and have lost 8 pounds because I have no appetite.
It seems like I’ve been sick most of the time since this started with colds and gastro problems. Constant colds and long periods of nausea. I don’t even care about that stuff though. I’m just so sad over the loss of my mental abilities… Where is the best place to look for help? I have recently found a great doctor – an internist and professor at one of the best medical schools in the country. I went to him and he said he had no idea what was going on, but likely there was depression and anxiety. Like all of you I know that that is secondary at best. How can I get a great ally like him to work with me? Is there something to say or to bring to him?
-Eric
Thanks for the reply, Hip.
My energy is on and off day by day. Sometimes it can change in just a couple hours. Usually I do OK with my energy, but I used to sleep 4-5 hours a night for most of my young adult life and do fine though I would have been wise to get more. Since this escalated I need 7-9 and sometimes must have more. When I hit the pillow I am almost always immediately asleep. It’s not so bad compared to the insomnia I used to have, in actuality.
My body just feels weak. Sometimes (especially if I catch myself falling asleep on the couch in front of the TV) I notice I hardly breathe. During the day I make a point to keep breathing to keep myself oxygenated. When my anxiety was worse, I would notice going for long periods breathing very shallow and slightly, and making sure to get deep breaths, as weird and new age as it sounds, helped. My anxiety would lessen a bit, and more importantly the foggy head feeling would be a bit better.
I’ll definitely check out piracetam, Hip. Thank you so much for the tip…
For occasional fatigue, right now I’ve found that small doses of Rhodiola Rosea help better than anything else. My brand is Verde Botanicals. They get good reviews but I don’t know they are any better than anything else. For me, the most effective way to take them is to take a tiny bit of powder out of the pills at a time. One pill may last 5-7 days. Of equal effectiveness for me is their “Energy Reserves” version. I do the same tiny amount for this. It’s nice to have and phase in and out as I need. One pill probably lasts a month but I’ll probably use it all in the same week.
Also I have a brand of Multivitamins “ADAM” in which I will break a piece off as needed. Once again it will probably end up being 5-7 doses. This, like many other multi vitamins, has some energy boosting herbs (ginseng I’m pretty sure). Anyways I’m sharing this with you and everyone else because it took me a long long time to realize that taking the full dose is much less effective for me than taking a much smaller dose. Many times I felt myself MORE tired after a entire pill. And I’m pretty sure the full dose for both brands is 2 pills a day! I don’t think the brand matters too much but both work well for me.
Taking everything you’ve replied with earlier into account, I think my best course of action is to make solving this into a “project” rather than a “hobby”. I find myself looking up things as I go about my day that may give me some clues, finding information and forgetting again (lol). I found an online note taking site I’ve been using for memory issues and I’ve started using it for saving what I’ve found about what’s going on in me. I have started using my phone to capture ideas too. The issue with note taking was that I’m embarrassed if someone were to find it. I am getting over it by realizing that there are much worse consequences for not taking this seriously than people reading about what is going on.
Also, when I visit my doctor I avoid.. the more emotional aspects of this condition. I don’t want to come across as a wimp, so I always leave the office knowing that he doesn’t think this is as big of a deal as it really is. How did you phrase it to your doctor?
Anyways, I’m ready to get better. Like many of you probably have; I’ve spent a HUGE amount of time thinking and experimenting and ruminating about this condition. I’d like to help other people out as I get better, so I’ll update as everything shapes up.
Thanks again Hip.
Eric
i think the worst about all this is not even being able to get treatment for the pain which can be very extream for me at times straight to the bones. well went to an hiv speacialist and im quite sure i herd them call the cdc and they told the nurse that it is an new std and there is nothing they can do or i was hearing things im sure i was’nt i swear i heard her say he looks posative but his test is not that would be the the 6th hiv test ive had plus one pcr by rna i have the worst dark circles under my eye i think you could have with new appearing lessions all the time the doctor straight up told me stop wasting your money there not going to do anythibng its been two years with no help or even a cause im starting to think i caught this from the hospital for when i went to get tested there was a two needles layed out and the lady that went befor me looked kinof sick.the shitty thing is theres no way to prove it the girl i caught it from still says shes fine so thats why i say it or shes just a slow progressor or scard shitless of what id do eather way it dont matter im already sick im still convinced the new p group of hiv is what it isdown right convinced my cbc still look great after two years of being sock it that show any immune diffecenctcy im lost with no hope in sight it seems theyre not goiing to help at all even if i was on my death bed its almost like there treating me like i have something worse that hiv i dont no
hows everyone doing and looking its been a while for all of us on here also if i wanted to be checked for the new p strain does anyone no how i would go by in doing that?
Hi Hip and everyone else…
I have been offline for over 12months and trying to get on with life. Regardless of all the ongoing symptoms that I think connected to the Virus I think I have on this well informed/helpful blog.
To date I still have the following:
– Skin crawling still mainly in legs, head, face and hands. Sometimes it feels as though the PN has gone and then comes bk to haunt me with a vengeance. I try and not get my hopes up.
– Bloodshot eye – only ever on one side and never both at the same time.
– Muscle twitching – mainly upper legs, thigh and upper chest and arms.
– Receding gums
– Itchy left hand palm with the right hand palm being ok and not itchy. Or I don’t notice it.
– Anxiety has really worsened over last 6-12 mths. I sometimes think people are watching me. Or whether I might have offended someone.
– Reoccurring ache on right hand side of chest/stomach just below rib cage. No bruising or visible swelling, but a definite dull ache.
– Periodic Chest pain just like indigestion but more uncomfortable than this. Diet is good btw.
– Loose knee ligaments. Legs sometimes give out, but moreso left knee.
– Sudden shooting pains that can be anywhere.
– Really short of breath when bending over to pick something up, even for the slightest period and then feel very dizzy and like I am short of breath almost immediately. Again fitness good.. I am not overweight/obese.
So YES everything is pretty much like it was 12-18mths ago, no lapse just all of the above is ongoing. And that link to the Enterovirus Foundation website whee it lists all the symptoms kind of confirms to me.. We see things in us, that others don’t..
As usual, thanks for this blog.. it helps me deal with it all when I need it.
NeilW
I really love this site TY, makes me feel better just knowing I’m not alone…. I’ve been in pain going on 6 years now, I have the wrinkling of the skin and the dark spots on the legs that don’t want to go away, kind of fungal looking like you said (mainly where I had mosquito bites and poison ivy lesions and mainly on my right leg and tiredness too, three months ago I started a new diet where you mainly eat meat and salad, and it’s made my pain in my chest a ton better and I can sleep too but I now have had a sore throat for 3 months. I had swollen lymph nodes in the groin for several months last year but this is better and my neck was swollen when my throat started hurting 3 months ago, swelling is better but throat still hurts. But it defiantly makes sense, I fell like I’ve been cycling an infection that just wont go away but won’t show up on any test either!!! I’m not big on taking a laundry list of pills, other than diet what would you suggest in order of importance to try so I can do a little at a time so I can make as few changes as possible… TY so much for this site!!!
@ unk
You really think you have hiv-p? The description of it sounds like it would be pretty easy to tell if you had it and I think you’d be pretty miserable! You mentioned pain but unless its in your jaw and mouth area I think hiv-p would be unlikely. Just my two cents though. Sorry to hear you’re feeling bad.
HIV periodontitis (HIV-P),
n an aggressive form of periodontal disease with all the characteristics of HIV-G combined with those of periodontitis: soft tissue ulceration and necrosis and rapid destruction of the periodontium and bone. The condition is very painful. HIV-P may resemble acute necrotizing ulcerative gingivitis (ANUG). However, ANUG is limited to the soft tissue, whereas HIV-P disease extends into the crestal bone.#
More clarification: http://www.aegis.com/pubs/bala/1992/BA920411.html
Olive Leaf Extract is very effective against viruses as well as Elderberry. Also drinking grapfruit juice is good too.
God bless you!
@ Hip
thx for the clarification. I looked it up but found nothing on it but what I posted.
Hey everybody.
Lately, I’ve been speculating on the similarity between our symptoms and general HIV and I thought that, since you have been on the topic, I would put my my two cents in.
I have not done any research on the different types of HIV, but I wonder if any of them are transmitted through saliva like our virus is? If not, then my guess is that our virus is in fact a new strain of HIV that has evolved to be able to live in our saliva. I also guess that, in order to live in our saliva, the virus has lost a great deal of it’s strength.
What do you think, Hip; are there any know strains of HIV that can be transmitted via human saliva?
The best way to describe the FOA China disease is like constantly having an allergic reaction where your face gets red and your body is having an extreme inflmmation response to the virus. I have found skullcap (natures xanax) and taking ProBoost has really helped against the symptoms. ProBoost induces cell death and is a great antiviral. After a week of ProBoost I have felt almost normal again. Im not sure if I will need to take it forever but its working for now.
Hi Msl, How many packets of ProBoost do you take per day and under what circumstances?
2 per day due to cost. Am and pm with food.
Hi again,
After a year, I have found an effective cure for myself (after trying lots of cures). It’s ‘distilled thyme water‘…
I drink it (and gargle with it) regularly (started to use it few months ago).
Significant changes: My tonsils’ color is turning back to normal (I realized that distilled thyme water is a strong thinner). I feel really relaxed mentally and physically. My back pain is getting better. There’s no inflammation around my tonsils! My instestines work a lot better. My metabolism and immune system is running way better than ever (I think it catalyses the metabolism).
No changes: other problems not solved yet :) .
Use it at your own risk and please research about its side effects before using it. (As far as I know, if you have been diagnosed with goiter, you shouldn’t use it.)
My first post @ Jan 2010:
Many thanks for this info, Atn. It is always appreciated when someone tries lots of remedies, and then on finding a remedy that works for them, posts the details here.
I am guessing that the “thyme water” you are using is what is scientifically called the “aqueous extract of thyme” – or more simply – a tea made from passing hot water through thyme leaves.
Is this correct?
Or maybe you mean “steam distillation”, in which case, this process produces an essential oil product of thyme. Essential oils are usually sold in small bottles of around 10 ml, and the dose when taking essential oils is usually not more than a fews drops.
I read that the aqueous extract of thyme is quite a powerful antibiotic, especially against helicobacter pylori – the bacterium that causes stomach ulcers. And also that the aqueous extract of thyme is good at healing bacterial throat infections, and throat inflammation, when gargled three times a day.
The aqueous extract of thyme also seems to have effect against herpes simplex 1 and 2.
Thyme seems to be a good anti-inflammatory: the thymol component in thyme inhibits elastase (the enzyme that breaks down elastin – and which I think may be responsible for our skin symptoms). High elastase is connected to inflammation. However, thymol is not very soluble water, so not much will be found in the aqueous extract of thyme; thymol will only be found in large quantities in the essential oil of thyme.
Carvacrol is another component of thyme essential oil, and carvacrol is a powerful anti-inflammatory, in reducing COX-2 inflammation.
– Hip
Hi Hip,
Your guess is correct; it’s aqueous extract of thyme in a big bottle (not tea or oil).
It can’t be used directly (it really burns, it’s just like acid), I mix it with water (for a standard drinking water glass, adding 1+1/2 dessert spoon tyhme water to flat water).
As you mentioned, it also calms down the stomach (I have helicobacter pylori).
Thanks a lot Hip, for great/detailed information.
Hi:
I am having most of the symptoms described by you.
1. From my teenage, i have had frequent throat infections and had been suggested tonsillectomy by some doctors and some doctors did not agree with tonsillectomy.
2. At age 29, i had chronic diarrhea and after undergoing EGD and colonoscopy, they could find nothing and told that it is due to stress. (note: They checked stool only for ova and parasites and it was negative. No other stool test/culture was done).
3. At age 31 I had lymph node enlargement and found that i had Tuberculosis. I got treated for that and stopped the medication since my eyes got reddish.
4. Now, at age 32, I am having the following problems:
a. Recurrent throat infections.
b. Bloating and intermittent diarrhea.
c. Again eye redness that resolved with ofloxacin.
d. Left knee pain.
e. Left great toe numbness at the tip.
f. Some red colored skin changes.
g. Feeling heavy in the head.
h. Some decreased mental functioning.
I have done a HIV test and it came negative.
I am totally confused and not able to concentrate on my work due to the fear of death without any confirmed diagnosis or treatment.
Kindly help me please in diagnosing my disease. It is creating lot of problems in my life.
hello, I just read your text concerning *chronic sore throat desease* and *cfs*. I am suffering of the same desease since more than 20 years. I am a family doctor. Who are you exactly? Are you a MD or someone with a scientific background? thanks
Hi John
I have scientific background (postgraduate), but my medical and biochemical knowledge is extremely limited. I am learning this little by little, because this helps me understand more about chronic fatigue syndrome.
Most of the information on this website is standard knowledge/research on chronic fatigue syndrome. In particular, this website provides details on all the viruses, bacteria, and protozoa that have been associated with chronic fatigue syndrome.
This website also covers the specific symptoms produced by virus that I caught (which I have been told, by an infectious disease expert, is probably an enterovirus). This virus I caught has spread to most of my friends and family; most of these people with this virus have a become a little more fatigued, stressed, depressed, etc; but in my case, I was affected more severely: I developed chronic fatigue syndrome and high anxiety symptoms.
For further information on chronic fatigue syndrome: a very good website that provides a nice research overview, and all the latest news on chronic fatigue syndrome is the PHOENIX RISING forum:
CFS RESEARCH OVERVIEW:
http://aboutmecfs.org/HeadPgs/ResearchIntro.aspx
CFS LATEST NEWS:
http://forums.aboutmecfs.org/content.php?94-Research-ME-CFS-CFS-Phoenix-Rising
I hope this of interest.
– Hip
Good news, I think I found something that works. I have had a sore throat on the right side as well as fullness in the right ear for over a year. I had given up on feeling better. I was convinced I had this virus (if it exists) as I had most of the other symptoms as well. My throat specialist told me that he thinks I injured my throat and it is not healing because I constantly clear my throat.
I tried a few things listed below and after 2 months (it takes a while) it really made a big difference
1) Stopped clearing my throat, I would drink hot water when I felt the need
2) before going to bed I would drink hot water with cayenne pepper
3) Started using deodorant with no chemicals (from Whole foods)
4) Took ibuprofen every night
5) no coffee, switched to green tea
I hope this helps a few of us out there
Has anyone ever experimented with LED Light Therapy?
http://www.telegraph.co.uk/health/healthnews/8278741/Rogue-gene-allows-cancer-to-spread-around-the-body.html
First I must say that this is very helpful webpage. I got something that match most of what is described on this page. I would like to add some of my experiences with this nasty thing:
1. The cause is most probably the bacteria (not virus or fungi)
2. The bacteria can be treated with antibiotics, but only temporarily (it reappears shortly after completion of ATB cure and ATB will become ineffective against the infection after some time)
3. The disease is curable (i got it and have cured, but after some time i got it once more
4. The bacteria is most probably Staphylococcus, or Chlamydia pneumoniae
Honestly this has to be the most sick I have ever been I cant even hardly stand up and when I blow my nose I get so dizzy the room starts spinning
I have the majority of the symptoms spoken of on this page.
Sore throat that seems to come and go especially when I don’t get enough sleep. I had a heart attack about three years ago at the age of 21 they said if was an infection of the sack around the heart I recovered with no antibiotics but they never found out what caused the infection. I have horrible stomach problems and get random headaches and throw up randomly. in the last six months I have gotten a prickly itchy feeling all over my body that seems to be the worst when I sit down or lay down. Horrible anxiety at random and memory issue. Also blurry vision but I’ve been told my eyes are fine. I get very tired at random and I also think after I eat. loss of balance at times like my feet our not stable or something. I got pink eye randomly and in the last month and the doctor told me it looked virus.
In recent months I’ve been getting like rashes or like skin infections on my groin that come and go at what seems to be a really quick pace. I think some of the symptoms started when I was 16 and I am now 24. I’ve been going to the doctor and have seen my primary who has ran blood work for Hiv diabetes organ function and they all came back negative and good organ function. I’ve seen a dermatologist who did not seem to think I had a skin infection but seen it at an almost healed time after returning multiple times he saw small red pimple like bums that he cut and tested a light something cocus came up and he finally gave me antibiotics they seem to help. Also I was sent to a neurologist and he said I might have restless leg syndrome and gave me gabatin which seems to make the prickly feeling not as bad and capable of standing.
But it’s hard and very depressing because I keep suggesting that there might be something else cancer or something I mean I feel that they should be telling me what to get tested for not he other way around. But they think I’m crazy and have suggested a phycologist before even trying anything else the neurologist seem to be the only one with a open mind that wants to try and help me before telling me that i’m crazy. Well on a better note coming across this sight has made me feel better and given me some hope I don’t know if this unknown virus is what I have but I would like to try some of the treatments you suggest. I’m not scared of dying but if I am I would feel stupid if I had a chance to save myself and did nothing. It would be much appreciated to get your opinions and suggestions for me thanks.
Ok, there is many Staph. species, and there are some points that makes me think that this is the “bug” :
1.It posseses strong enzym that dissolves connective tissue (colagen si the glue of spinal cord and all of joints
2.The chemical -SAG it makes is able to create immunomass (like allergies to milk protein, etc…)
3.resistance to ATB
…
There may be possibly many “triggers” for Staph. to become awaken once it gets into the body. Basicaly anything that you have already mentioned that lowers the imunity. No medical test gives 100% sure results (morover this bug can “seat” anywhere in the body to create havoc on opposite side of the body). .As tissue is getting weaker it opens the door for more toxins and other bugs to do bad job.
A little bit more:
Staphylococcus lowers the immunity in many ways:
1. It is haemolytic which means that it steals iron from the blood and causes its deficiency
2. By making the lung tissue thinner it starts repeating infections and some kind of permanent pneumonia, caused by bacteria, fungi, and any viruses passing over, This together with anemia worsens the oxygen supply to the body
3.By dissolving the gut tissue it releases food toxins to enter the blood freely
The response of the body to this is to send body “warriors” to get rid of all infections. Usual way to do that is that white blood cells “shoot” toxins (elastase is their tool to be faster) on anything that moves. It doesn’t solve the primary reason (probably Staphylococcus), but they focus on the secondary. And this is a kind of loop.
Hi
I am a physicist researching healing based upon v. advanced physics for 25 years. I have specialized in immune system problems and infections diseases for the last 10 years. I caught the “mood virus” last autumn (although its symptoms were a bit different from those above), thought I had got rid of it and it turned into what appeared to be Lyme disease. I then developed a treatment for Lyme and as the Lyme left, the Lyme/mood virus came back. One interpretion is that the “mood virus” is actually a drug resistant viral form of Lyme disease. I cannot prove this, but it is possible that antibiotics have forced Lyme to become a contagious virus which carries the Lyme DNA into the body so that it then reverts to Lyme plus the virus. Richard
Really interesting conversation going on. So what I’m seeing is that this could actually be a lot of different things. I’ve heard about this cold virus that is found much more often in overweight people. The idea is that the virus changes the physiology of the person. Do you think that it’s possible that we are all under the influence of something like this?
Also… I’ve had fluid in my ears for a few months now and Dr. has looked in there. Have an appointment in a week or so. Z-pak didn’t help. You guys deal with this, any ideas?
There is some possible explanation to change of mood with the “virus”.
All of the viruses trigger interferon response and as well some bacteria.
What interferon does is degradation of tryptophan-“good” mood amino acid.
Some bacteria (Staph., Streptococcus) degrades tryptophan directly, besides triggering interferon response.
What worked best with me is taking allicin supplement with a diet which does not contain any milk and very little sugars and mould.
I know tryptophan is a building block for Serotonin. I just learned that 80% of Serotonin is in the digestive tract, regulating how fast food moves through.
Can serotonin travel between the two places?
Maybe another way to combat this loss of tryptophan is through probiotics.
Hmmm,…. not sure about this. Degradation of tryptophan is a kind of defense. The bugs needs it and human body needs it as well. But there is assumption that humans needs less tryptophan than bugs. In a short term this works and most viruses are not able to cope with tryptophan shortage. But if there is some bug that is able to survive it in a longer term , then the interferon strategy is not so effective, since the amino acid is necessary for good functioning of human (good sleep, imunity,…).
I did not know that. Is this degradation of tryptophan a defense just against bacteria, or does it also work for some viruses too?
hip I’m confused about one thing. in Dr Gina Nick: Sickness Syndrome it said to stay away from grapeseed oil cuz is causes inflammation but in your treatment page it said to try grape seed extract. Is there a difference? Also if I try these methods and try to get my stomach tested could they make it harder for the doctors to find evidence of the enterovirus if it’s there?
Yes, grape seed extract is not the same as grape seed oil.
Grape seed extract is anti-inflammatory.
Grape seed oil has a more complex status regarding pro- or anti-inflammation.
Gina Nick is saying that grape seed oil is pro-inflammatory because it is high in omega 6 essential fatty acids (EFAs), and omega 6 has pro-inflammatory properties. But in fact, it is a little more complicated than that, because omega 6 also has some anti-inflammatory properties too! I found that that taking very high doses of omega 6 was strongly anti-inflammatory for me. I was taking around 10 ml of evening primrose oil a day, which is loaded with omega 6.
I am not entirely sure why evening primrose oil worked well for my brain inflammation, but just by experimenting with it, I know it does work.
Actually, I forget to put high dose of omega 6 / evening primrose oil on the treatments page. I found evening primrose oil was a reasonably good way to treat brain inflammation.
Omega 6 EFAs are used quite a lot in CFS, and generally give benefit.
Note that all the stuff on the Treatments Page definitely works, as I have only put things there that I have tried and tested.
I have tried out literally hundreds and hundred of supplements: herbs, vitamins, flavonoids, enzymes, amino acids, hormones, essential oils, nootropics, and various pharmaceutical drugs, and out of all these, I only list the supplements that work, in the hope that this information will be beneficial for other people with this horrible virus.
Of course, there is no guarantee that these remedies will work equally well for you, as you might have a different virus, and you probably will have a different set of co-infections in your body.
So please use the info in the treatments page as a starting point, but you also need to follow your own a trial and error approach: try these things out, but if they don’t work, try something else.
This treatments page is an ongoing project: I’m constantly testing new approaches, and as soon as I find anything that provides significant benefits, I usually put it on the treatments page (and I generally email out this info to those that have supplied an email address).
And if you happen to find some supplement that you notice works pretty well, please post the information, to let everyone here know.
To answer your other question: I am not sure if anti-inflammatories might make it harder to detect enterovirus; it is conceivable, so if you were going to do any tests, you might want to stop taking supplement say 2 week before hand.
Interferon works mostly against viruses and small number of bacteria. The reason is that viruses can live only inside the cells so depleting tryptophan inside the cell is effective in order to stop their replication. The same works for bacteria that live inside cells. For some reason interferon is used as well for one or two kinds of extracelular bacteria (i.e. stphylococcus and streptococcus…). Some viruses avoid this mechanism of inf action by infecting some immunity cells (it is not possible to completly deplet tryptophan inside these cells). But these are only a few (like HIV, EBV,…).
All of the treatments that have helped me with this strange disease have come from alternative medicine. I just ran across this website while looking for information on humic and fulvic acids which are said to be effective agains a host of microbes. They also have a form of colloidal silver which they say is more effective than other varieties. I make my own CS and it has been good for knocking out colds and treating gingivitis and cuts and things but this is probably too high tech to make at home.
http://www.nanohealthsolutions.com/
Hip,
there is a lot of discussion about CFS and many suspect and try to find some new virus which would give an explanation to various symptoms that occur with the disease. But symptoms like hypoxia, hypoglycemia, fatigue, heart palpitations are as well typical manifestation of bacterial sepsis. I think there is no virus that may have incubation period of 2 hours. The virus that replicates so quickly would kill a man in 3 hours or so. ANd that is not the aim of any virus. It just wants to steal “food” as long as it is possible.
This virus does have an incubation period of eight hours or less.
The incubation period of this pathogen is roughly in the 12 to 24 hours range (which I have observed several times, as this pathogen spread through my social group, and infected various people), but on one occasion it was definitely within 8 hours (and perhaps slightly less, like 7 hours).
When my throat was very sore with the infection, three separate bacterial swabs and cultures came back negative. So this tends to indicate it is not bacterium.
But CFS can be caused by both viruses and bacteria (and protozoa too). On this page, I have listed all the different viruses, bacteria, and protozoa that can cause CFS. If you know of any others that I have not included, please post the info.
Alright so I got the hole nine whole food had just about everything. It cost about 410 $ for everything. They only had one prebiotic psyllium husk.
Grape seed extract
Propolis
Rhodiola rosea
co q 10
Ashwagnadha
NADH
Spanish Saffron :( I wanted persian
L- theanine
Echinacea
saccharomyces-Boulardii + MOS
Holy basil
Quercetin
L-carnosine
Colostrum
Cats Claw
Curcumin
hemp seed oil
sesame Oil
enteric coated 5 billion organisms probiotic capsules
Also Niacin was wondering if that was the same as Niacinamide?
So I’ma Follow hips instructions And see what happens And let u know what works and what does not. Omega 3 6 and 9 seem to help already with head spaciness and head aces.
Also Vision optimizer which contain a # of the things listed above and more for example ginkgo, Lutein, zeaxanthin, bilberry alpha lipoid acid, taurine, selenium and eye bright(euphrasia officiinalis) and others. But at three a day my vision is much clearer.
Hip I would love to hear any extra suggestions on how best to take these medication. For example you said in the treatment page to start off with grape seed extract. I guess my concern is if I take to much of things that are new to my body I could get sicker. have you had bad experiences when starting any of these medications/herbs to quick?
2 Anonymous,
Respect, your brain still works well ).
@ hip
did you experience joints clicking， all my joints clicks and this really makes me worried. Could you suggest some treatment for this symptom? thank you very much
Once again Kozak shows up out of the blue with nothing helpful.
Joint clicking can mean inflammation. I have had that with an injured joint until it fully healed. Once again, anti-infammatories would be good.
This website was a revalation as to what I have been dealing with for over two years! No doctor would help and at the beginning I just wanted to off myself because of the depression and pyschological issues. Eventually I came to realize through trial and error that it was an infection and have learned how to cope in most ways but some aspects have never really improved, notably some depression and anxiety elements, neurological issues : numbness on left side of body in hand and feet, and clicking and tender joints now mostly on left side of body only. I have orded a number of treatment supplements listed on this site and beginning to experiment with them. The things that sem to help already namely fresh garlic, some use of tetracyclines and a number of other items (fish oil,zinc, neurotonin and wellbutrin as meds) A number of these I found while researching lyme and CFS treatments.
My question would be: Can we ever expect the virus to resolve itself or go into remission. I am able to fiunction mostly but know my qualty of life has changed considerably. Has anyone seen it resolve to the point where they generally feel well?
I am actually better in many ways than I was before I got the virus due to the Nutri-Energetic System which got rid of the fatigue, sore throat and thick mucous. I also have to keep on top of the probiotics to keep the bad bugs in my gut down or I get the anxiety, dizziness, and other symptoms of lack of probiotics. It is a constant fight with the virus over the good guys and bad guys in my gut but I am maintaining. I take a whole host of supplements that seem to help, stay away from sugar and refined foods and I live a fairly normal life that doesn’t involve exchanging body fluids with anyone. : )
T,
i have seen that.
Cracking joints is not something to be worried about.
See here for more info: http://en.wikipedia.org/wiki/Cracking_joints
You might want to try something like chondroitin sulfate, which helps repair the joint cartilage. Chondroitin sulfate is also a pretty good “blood thinner” (anticoagulant for blood platelets), and people with CFS have problems with reduced blood flow (as well as reduced total blood volume, oddly enough). So blood thinners can help.
I always find that the best supplements are those that help in multiple different ways.
hip I got colsotrum pill not powder should I still take 7 grams worths or is a lower does suitable?
also I wish I read your reply on niacin I thing it made me have an allergic reaction last night lol good old benadryl stopped it.
Tellin you gang, add Larix to the list of good stuff to take. I am completely convinced at this point that it is the sole reason I have not gotten the bad flu going around work, which I have been exposed to for over a month now. For those just tuning in to this blog, not getting an office flu or cold, even when only a few people had it, has been unprecedented for me since getting this illness in 2007. The only thing I’ve been taking that is different during the last month was Larix, which I started taking at the end of December.
http://www.gotbody.com/larix-1000mg-p-963.html?gclid=CLLzrYvC5aYCFclY2godjlvnZA
On another note, anyone getting brown skin tags all over that sorta look like they could be cancer but don’t quite look like the three common types?
I was wondering if enteric coated capsules work agents antibiotics. it is possible that they could make it harder for antibiotics to work?
I think they kill all bacteria
For some very impressive Reviews of the Eclectic Institute Larix supplement read the 23 Reviews at iherb.com. Just click on the Product Reviews tab.
http://www.iherb.com/Eclectic-Institute-Larix-1000-mg-100-Veggie-Tabs/2871?at=0
fernando,
Enteric coated capsules, that is the capsule itself and not the contents, are perfectly safe and have no killing power. Otherwise they wouldn’t be used to deliver Probiotics to the intestines and bowel. The purpose of the enteric coating is to protect the Probiotics from gastrointestinal juices (digestive enzymes) and the HCL (hydrochloric acid) produced in the stomach, so that they will arive in the intestines and bowel unharmed and alive, where the capsule will finally dissolve and release the Probiotics to do their job, a significant part of which is to fortify and boost the immune system. As an example, the Lactobacillus salivarius strain of Probiotics effectively kills the Helicobacter pylori bacterium which is known to be a cause of stomach ulcers.
LOL well I did not know that hip but I was more thinking for example I been prescribed the antibiotic doxycycline and from my understanding antibiotics kill all bacteria both good and bad. So my concern was that if i’m taking this antibiotic to kill bad bacteria that it might need to work harder to kill good bacteria too if i’m adding that in my body. so maybe I should wait tell i’m done with the antibiotics to take the good bacteria. But maybe my thinking is wrong. Dose probiotic bacteria work good with antibiotics?
fernando,
This is Beach Man and not hip. I believe you just responded to my Post about the use of Probiotics in enteric coated capsules just above your Post. The Probiotics will not lessen or decrease the effectiveness of the antibiotic. However, in order to lessen the killing effect of the antibiotic on the Probiotics do not take the antibiotic and the Probiotics at the same time. Take the Probiotics on an empty stomach two or more hours after you take the antibiotic.
O sorry thanks for the response beach man you cleared it all up for me I will make sure to do this when taking my probiotics!!!!
Anyone taking high doses of Vitamin B3 should make sure they follow Hip’s advice and take the niacinamide form of the vitamin and NOT the niacin form. Too much of the niacin form over an extended period of time can damage your Liver. The following CAUTION about that is quoted from the book, “Prescription for NUTRITIONAL HEALING” written by Dr. James F. Balch, M.D. (a well known and reputable integrative physician) and his wife, Phyllis A. Balch, C.N.C.
“People who are pregnant or who suffer from diabetes, glaucoma, gout, liver disease, or peptic ulcers should use niacin supplements with caution. Amounts over 500 milligrams daily may cause liver damage if taken for prolonged periods.”
Again, this CAUTION pertains to the NIACIN form of Vitamin B3 and NOT to the NIACINAMIDE form.
Yes as as to skin tags I’ve got em and other weird skin erruptions with a small red dot in center, sometimes two red dots that like like a bite. Thes red spots develop and deepen and eventually have a knot of hard tissue underneath. The brown age, liver spots, skin tages look bad and seem to be part of the premature aging associated.
LIVER DAMAGE: As far as I am aware, both the niacin and niacinamide forms of vitamin B3 may cause some liver damage at prolonged, long-term high doses of over 3 grams a day (the damage is reversible once you stop taking B3). Timed-release tablets pose a much high risk for this damage, so avoid timed-release. But anyway if you keep below 3 grams, you should be be fine.
Niacin (at a dose of 50 to 200 mg three times daily) is very useful for anyone with high blood pressure, since it dilates and opens all the peripheral arteries, flushing blood to your peripheries and skin, and this helps combat blood pressure.
SKIN TAGS: note that skin tags are not the same as liver spots (brown age spots), and neither of these are the same as moles.
Vitamin B3 has been used as a treatment for schizophrenia and psychosis. See here:
http://www.rawfoodinfo.com/articles/art_niacinforpsychosis.html
Interestingly, this article states that one woman took 60 grams of niacin in one go (and was fine).
Another good treatment for psychosis type symptoms is high dose vitamin C powder, at around 5 grams, taken orally three times a day. You can take higher doses of vitamin C intravenously without problem, but taken orally you reach bowel tolerance at around a total of 15 grams of C a day – that is to say, you get diarrhea if you go much higher (but this limit varies from person to person).
You can take both vitamin B3 (1 gram) and vitamin C (5 grams) together three times a day, as a way to treat any psychosis type symptoms you may experience. A touch of psychosis is often experienced in anxiety disorder.
But I found the better long-term solution for both anxiety and psychosis caused by this virus is lowering overall brain inflammation with anti-inflammatories. And remember, in many cases, brain inflammation is kicked off by gut inflammation, hence the focus on gut health with pre and probiotics.
Nevertheless, high dose vitamin B3 and vitamin C are good backups that act fast (within hours) when you need them
Beach Man, are you a chronic fatigue syndrome / anxiety disorder suffer as well, or do you just have general interests in alternative and orthomolecular medicine, etc?
is it cool to take colostrum with your probiotics? cuz they are both supposed to be on an empty stomach.
@ hip
thank you 4 your advice and i will try that. Besides, I guess the loose joints may be one cause 4 the cracking joints as well.